September - time to hold on tight for a wild ride.
Thursday BabyM will be admitted to Lancaster General for her “prep,” followed by her colonoscopy and endoscopy on Friday. This will not be all that fun since she will have to fast for more than 24 hours and will more than likely have a nasal feeding tube put in to drink the prep liquid…which will then force her bowels to dispel EVERYTHING.
Our favorite Doctor Sullivan is in agreement that we should take this opportunity to run Lyme and Co-Infection tests on a biopsy. Now we are just hoping that the GI doc agrees to give us an “extra” biopsy. Honestly though, I have yet to meet a doctor who is fond of another doctor saying, “oh, by the way, you’re not going to run all the tests that should be run…let me.” This should be somewhat interesting, but my hope is in God so I have no doubt that it will happen.
As it turns out, I am not nearly as annoyed with our GI as I thought I was. I was able to speak with him voice to voice (without going through the nurse) about why he was not ordering scopes for both of the kids. Although I didn’t totally agree with his reasoning, it did make sense on one level. I am convinced that the nurse – the communication barrier – is the problem here. When I was able to make my position clear to the doctor he agreed to order BabyR’s tests. So as long as BabyM’s results don’t show an infectious disease, BabyR will have his scopes on the 24th of this month. If there is an infectious disease on BabyM’s results, the doc wants to treat them both as a matter of course. I don’t agree with this approach across the board, but we’ll see.
So...
2 days in the hospital with BabyM this week
A trip to Germantown on Monday to see my Lyme doc
Away on a MOM’S WEEKEND!! (This is SO great, but given our schedule this month I would have changed the date of my trip if I hadn’t already bought the plane ticket.)
Back just in time for our trip to Philly for a double appointment with CHOP Allergy
Then back to the hospital for 2 more days for BabyR
All of this happens within a 2 week time period.
Here we go!
Seriously praying for you for the next few weeks. You let me know if you need ANYTHING and I mean anything! I can make meals, clean house, whatever you need! Love you!
ReplyDelete