I am the mother to twin children who HAD FPIES - Food Protein Induced Enterocolitis Syndrome. Their condition prevented them from eating food. They used to survive with Nutramigen AA, a prescription medical formula...that was before we found the GAPS healing diet....and that was before Divine Healing! Today...no foods are off limits! This is the story of God(the Father) working it all out! To Him ALL the glory.
About two weeks ago LittleM began having a hysterical
over-reaction to being buckled in the car if there was not a grown-up IN the
car with her.Even though we don’t leave
the kid’s in the car alone she would FREAK out!After buckling the twins in their seats I would close the door and walk
around the car to the driver’s seat.In
that amount of time she would be literally in hysterics.Overnight this little girl became completely
terrified of being left in the car.
One day she got into her seat, but refused to buckle herself
until I was in the car.Thinking we were
simply dealing with the next chapter in the developing war of wills with your
typical toddler, I verbally forced her to buckle herself.I told her that she needed to obey and if she
did not she would have a punishment.She
cried and cried, but as I firmly repeated myself she obeyed.BUT by the time I got from the passenger seat
(where I had been putting the lunch and diaper bag in) to the driver’s seat she
was a mess.What I learned that day
though, was that if she was not buckled in (read: trapped) she could handle
herself much better.
On another occasion my sister-in-law had LittleM.She stepped out of her mini-van to walk her
son to the front door for a play-date.LittleM FREAKED out.She was
scared of being left alone in the van.We don’t leave the kid’s in the car when we go places, but of course
there have been plenty of times when we’ve loaded them in the car and needed to
run back into the house to get whatever it was we might have forgotten
inside.In all of her 3.5 years of life
this reaction has NEVER occurred.
I began praying about this.Had something happened when I was not home that scared her?Had she been trapped in a closet (a favorite
playing spot) or the bathroom?Had there
been a punishment that made her feel particularly trapped?I asked my husband and there had been
nothing.One morning after praying about
it, I remembered an event that happened shortly after we moved in with my
in-laws.For various reasons, we put
a gate at the top of the stairs once we go to bed at night.We use both of the two bedrooms upstairs and
don’t want the kids wandering downstairs during the night.A few mornings when I went downstairs to make
the kid’s breakfast “bottle” I left the gate up.After only moments in the kitchen I was
running to the steps to help LittleM – who was hysterical at the top of the steps because
she was trapped upstairs without mommy.I
realized that this was somehow related to her fear in the car, but it was still
a mystery to me.
The other thing I have noticed in this same time frame has
been a deep inward breath that I clearly recognize as anxiety.This has also been most concerning to
me.I personally had a childhood wrought
with anxiety.I was painfully shy and
insecure (that is a whole other topic!).Watching the birth of this anxiety in LittleM was more difficult for me
than the hysteria really.So I continued
to pray that God would reveal the root.
Today I made “soup” for LittleM and LittleR. "Soup" - this was what we called vegetable and meat
puree before LittleM had her tongue-tie revision this May.There was a time when the kids were about 2
when this is what we were trying to get them to swallow.For some reason LittleM couldn’t even swallow
this!All she could accomplish was a
loose stage 1 baby food.The thicker “soup”
puree was too much and she would not swallow it.We were told again and again by the
occupational therapist that we were seeing that this was a behavioral
issue.Though I really didn’t think so,
the doctors continued to tell us that there was nothing wrong with LittleM’s
mouth.In a moment of doubting myself I
entertained this theory.I decided that
LittleM was GOING to swallow her soup or suffer the age appropriate punishment.This little 28 month old repeatedly chose
punishment over swallowing her “soup.”Thinking about this now brings tears to my eyes.We sat there at the table battling for hours.I decided that one day that she would not get
up from the table until she had eaten her 2 ounces.We literally sat there all morning.She was faling asleep at the table – both from
being tired and from being emotionally exhausted from the timeouts, spanks, and
yelling that she was enduring.I am not
advocating this approach – not at all.When I took her from the table and carried her sleeping into her room, I
sat there on the floor at her crib rocking her while I cried.It was terrible.After nap we went at it one more time.Later that evening I called my mom – I was at
the end of myself.After going over a 2-year-old's choice of discipline over swallowing some soup – a two-year-old who
loved the approval of her parents – my mother helped me to see that this was
crazy.She helped me to stand on what I
knew in my heart – something was physically wrong with LittleM’s mouth.As a side-note, it wasn’t long after that
that this OT and I simply COULD NOT work together.
Fast forward to today.For the first time since those days, I made “soup” for the kid’s.I didn’t call it soup because I didn’t want
to revisit that horrible experience on LittleM.I called it broccoli/carrot puree, but as
soon as LittleM saw it she said, “Did you make us soup?”I had to answer honestly, but I didn’t really
want to.I asked her if she wanted to
have it to which she said yes.That in
and of itself was a shock to me.She asked,
“Is this the same soup that I had when you made me a crib and I couldn’t get
out of there?”My heart fell like a
stone into my stomach.“Yes, it was
honey.”She just kept eating as though
it all meant nothing.
I sat there for a few moments wanting to cry, and then I
began talking.I knew that this was my
opportunity to do some repair work with my daughter.
“M,” I began, “Did that scare you when you were in your crib
and you couldn’t get out?”
“Yes it did, because I needed you and you didn’t come, and I
was screaming (yes she used the word screaming),” she answered.
Tears were welling up in my eyes.I had put her in her crib several times as punishment
in between each horrible bite.At one
point I was so angry/confused/frustrated that I closed the door to her room and
left her in there screaming for probably 10 minutes.Oh – I will never forget that day and I so
wish I could do it over again.Thank God
that he is bigger than that day.
“M. did you know that mommy made a mistake that day?Were you getting in trouble because you weren’t
swallowing your soup?”With a mouthful of
meatball, she shook her head yes.
“Mommy is very sorry, M.I didn’t know that you had a tongue
tie.I didn’t know that you COULDN’T
swallow your soup because your mouth wouldn’t work right.”
She talked with me about it for a few minutes.She was very matter of fact about it – not upset.I was absolutely shocked that she remembered
this event.I was not shocked that it
had affected her, but that she REMEMBERED it.Right now as I am writing there are tears in my eyes and a big hard lump
in my throat.But THANK THE LORD He is
BIGGER than this historical event in my daughter’s life.
I reiterated my sorrow over these events several times to my
3.5 year old – in 3.5 year old language.LittleR was there participating in the conversation too.He had some significant stress watching this
event when it happened. At one point I
very seriously called LittleM’s name and told her to look at me.When she took in one of those deep anxious
breaths I knew that she thought I was about to say something of a disciplinary
nature; to the contrary, I reiterated my regret and remorse to my
children.At that moment I believe I saw
a change in her countenance.It was as
though that little girl exhaled all that anxiety right out of her little
body.
When she was finished eating all of her lunch I got her down
from her booster seat and held both of her hands.I looked in her eyes and said, “M, mommy made
a big mistake and I am SO sorry.”This beautiful,
articulate little girl looked at me and said, “You ARE sorry, and I am sorry
too.”My heart melted and then she
melted it again when she reached her little arms around me and hugged me
tighter than ever before.
We always end timeout conversations in that way – holding hands,
conversation, hug…forgiven, but never before has that little girl reached out
and actively hugged me in one of those moments.Usually she passively lets me hug her.This was different.I am just
believing that the Lord healed something in that little one today – something that
I had done to her.
Thank you Lord that YOU are bigger than my brokenness.
Listen to this beautiful truth – spoken by the Lord to you
and me.
Misty Edwards
"I Knew What I Was Getting Into/All Men Are Broken"
“I knew what I was getting into when I called you
I knew what I was getting into when I said your name – I said it just the same.
I knew what I was getting into and I still like you.
I knew what I was getting into.
Listen my beloved,
I am not shocked by your failure.
I am not shocked even by your sin.
Only I can see the end from the beginning.
Only I can see where this is going.
Where you see only your failures, I see a fighter
.
When you see only your brokenness, I see a lover.
I am not shocked by your failure.
I am not shocked even by your sin.
Listen, listen, I knew what I was getting into when I called you.
I knew what I was getting into when I said your name – I said it just the same.
I knew what I was getting into and I still like you.
I knew what I was getting into.
Just don’t give up. Don’t give in.
If you don’t quit you will, you win.
It’s all that I’m asking,
Just don’t give up. Don’t give in.
If you don’t quit you win, you win.
Listen, cause everything is in my hands.
It’s gonna be all right - gonna be ok”
I hear him singing over you.
He says:
“Everything is in my hands – it’s gonna be alright, gonna be ok.”
He says,
“Everything is in my hands. It’s gonna be alright.”
I hear him singing over you.
And some of you are hearing Him saying your name.
Saying your name – he says to you,"
“I’m not like your father.
Listen my beloved one, I’m not like your father.
Cause even the best of them are just broken brothers.
Listen my child, listen to me
I’m not like your father,
why are you putting that on me?
Listen, listen, I’m not like your father.
I’m not like your father.
Cause even the best of them are just broken brothers.
Listen,
For all men broken,
and broken men break their children,
Who grow up to be broken men…
BUT I’m bigger than that."
"Listen, I’m bigger than that.
And all men are broken,
And broken me break their children,
Who grow up to be broken men…
But I’m bigger than that
Come to me – I’m bigger than that."
"I’m not like your father,
and some of you have been so afraid of repeating the same mistakes –
that fear has you frozen.
But listen, listen,
I have the power to change things,
and I have the power to make you new,
and I have the power to rearrange that same old chain.
And listen you’re not like your father.
It’s a new day, it’s a new day.
Your not like your father and the sins of their fathers, and their fathers, and their fathers and their fathers fathers will not be on you.
Just keep on, keep on coming…
Listen my beloved,
All men are broken
and broken men break their children
who grow up to be broken men.
Listen, I’m bigger than that.
You gotta let your fathers go.
Your fathers were broken by their fathers, who were broken by their fathers and their fathers and their fathers and on and on and on…”
We’re all in this together.
And there’s only one good father.
He’s the father of all creation.
He’s the father of lights,
the father of glory
and He loves us so well.
And he says,
“Everything is in my hands -
it’s gonna be alright –
you’re gonna be ok.
No regrets.
Everything is in my hands -
it’s gonna be alright –
you’re gonna be ok."
"And some of you have been so full of regrets.
Your babies are my babies.
Listen, your babies are my babies.
And I will be the father.
Cause your babies are my babies.
I’m gonna turn it all around - just wait and see.
I’m gonna make everything beautiful just in time.
I’m gonna turn it all around - just wait and see.
No regrets.
I’m gonna make everything beautiful just in time.
It’s just a matter of time."
For the past year and a half we have cooked more broth than I can really even figure out.Until recently my process was to pretty much keep the broth pot on the stove all the time.I would then blend a couple of “bottles” worth of meat/broth formula for each of the twins as needed.This was not really the adhering to the “work smarter not harder” train of thought.It was more of a “head above water” train of thought.Recently, as we moved in with my in-laws I realized that we really had to get a better process going since we would be sharing the kitchen.
Here we are about a month later and the process is quite a bit better.We cook a pot of broth and meat and then blend two days worth of formula all at one time.After this big blending job is done the hefty stock pot gets a much deserved rest on the baker’s rack.But the effort to get “old faithful” onto that baker’s rack has been a much dreaded effort for me.At some point over the last year and a half I have come to DESPISE cleaning this thing.The very thought of it was part of the reason I used to leave the thing on the stove all the time rather than blending the contents all at one time.It had gotten so bad that I pretty much refused to clean it and asked Shawn to be the official broth pot cleaner.
About a week ago something occurred to me that changed all of this.I am certain that it was that “still small voice” of the Holy Spirit in me – challenging me.I suddenly had a change of perspective.I realized that in reality the act of cleaning this dirty broth pot was really such a joyous honor.This pot that is instrumental in nourishing my children…this pot that nurtures the very “medicine” that is healing my children’s bodies…this pot is akin to the “hearth” in our home – the place where we gather as a family for warmth and togetherness.No, we don’t actually gather around the broth pot.Ha!But this pot – it is beautiful, and the act of cleaning it – the same!It has only needed to be cleaned twice since this great realization, but both of those times I thanked the Lord not just for the pot, but also for the opportunity to clean it again.
***
A few days ago my sister told me of a couple who shared their story in her church recently.When she told me that she gave them this blog address I thought, “Oh no.”Not that I didn’t want her to pass on the information, but their story…it makes the struggles we have faced seem so insignificant and writing about them, well, almost silly.This couple’s 10 month old baby had a degenerative condition.I believe they were told that their precious little girl would not live past the age of two.
Today I got word to pray for this family as their little girl went to be with Jesus.
***
Though I was already writing this blog post and had already decided that cleaning the broth pot would be an act of joy, the sobering reality of how blessed we are is overwhelming.The fact of the matter is that for some reason LittleM and LittleR were born with a rare and strange condition – a serious condition, BUT they are growing, healing, and even thriving.I am so thankful for the ways in which the Holy Spirit has changed my heart over the last year, but I am truly ashamed for some of the attitudes I held onto.